This is a long-overdue post on what it’s like to have adult ADHD/ADD. I was presumed “precocious” as a child, so my smartypants ADHD behaviors really went unnoticed. When I got to the adult grind of office work, I started having panic attacks, in part because I was massively overstimulated and unable to function appropriately (I still work best home alone.)

Is this my brain on stimulants, or is it an anemone that’s been manipulated beyond recognition with Photoshop?
I was diagnosed with adult ADD at age 23 or thereabouts. I started off with Concerta and it was a huge improvement. About 10 years later, as a PhD student, I switched from Concerta to Adderall (and then to Adderall XR.) Where I saw a 100% improvement in symptoms with Concerta (methylphenidate), I had a 1000% improvement on Adderall (dextroamphetamine-amphetamine salts), and even slightly better on the extended release formulation.
Yes, everyone has attention deficits, and ADHD is way overdiagnosed. It’s taken quite some time to figure out how to best express what the difference is, but the bottom line is this:
not everyone has attention deficits that are disabling.
By disabling, I mean that ADD can make it impossible to function at a normal level due to executive dysfunction in addition to problems with inattention, hyperactivity, and impulsivity. It permeates every part of my life, making everyday activities more difficult, and can cause great personal distress. That’s how I interpret “disruptive and inappropriate for developmental level” in the DSM definition of ADHD, slightly modified below to show only the symptoms that I exhibit. All symptoms must have been present for at least 6 months, but adults going for diagnosis need to present evidence from childhood as well.
Six or more of the following (9) symptoms of inattention:
Inattention (7)
- Often does not give close attention to details or makes careless mistakes in schoolwork, work, or other activities.
- Often has trouble keeping attention on tasks.
- Often has trouble organizing activities.
- Often avoids, dislikes, or doesn’t want to do things that take a lot of mental effort for a long period of time.
- Often loses things needed for tasks and activities.
- Is often easily distracted.
- Is often forgetful in daily activities.
Six or more of the following (9) symptoms of hyperactivity-impulsivity:
Hyperactivity (6)
- Often fidgets with hands or feet or squirms in seat.
- Often gets up from seat when remaining in seat is expected.
- Is often “on the go” or often acts as if “driven by a motor”.
- Often talks excessively.
Impulsivity (3)
- Often has trouble waiting one’s turn.
- Often interrupts or intrudes on others (e.g., butts into conversations).
In addition to the symptoms…
- Some symptoms that cause impairment were present before age 7 years.
- Some impairment from the symptoms is present in two or more settings (e.g. at work and at home).
- There must be clear evidence of significant impairment in social, school, or work functioning.
- The symptoms do not happen only during the course of a Pervasive Developmental Disorder, Schizophrenia, or other Psychotic Disorder. The symptoms are not better accounted for by another mental disorder (e.g. Mood Disorder, Anxiety Disorder, Dissociative Disorder, or a Personality Disorder).
I have the majority of symptoms from all categories and the severity is basically disabling for me. A more specific diagnosis would be ADHD, Combined Type. In addition to several diagnostic interviews (which all yielded positive dx’s), I’ve also taken the CPT II computer-based test. The results further substantiated the claim that my brain is simply screwed up in the departments that control attention, impulsivity, and (to a much lesser degree) hyperactivity. To make it all the more interesting, some of my bipolar symptoms overlap with the ADD symptoms, which made bipolar harder to detect for a long time.
To the symptoms above, I’d add inconsistent academic performance, low self-confidence and self-image, generalized anxiety due to cognitive deficits, executive dysfunction problems, underemployment, memory issues stemming from inattention, chronic insomnia, “noise” in my head, and delays in learning social norms of behavior. Almost all of these issues faded away almost as soon as I started taking stimulants. The symptoms that overlap with bipolar also improved substantially.
The meds made an enormous and unquestionably positive difference in my life. I only realized how unnecessarily difficult my life had been when I started meds. The drugs don’t just help with attention; there’s really so much more to it due to the pervasive effects of ADD symptoms. Being medicated solves a lot of problems for me and my quality of life is much better as a result.
People who don’t have AD(H)D typically cannot fathom how hard I work just to appear normal, suppress blatantly inappropriate behavior, and do certain everyday tasks that most people take for granted. It takes 5 times as much work for me to do anything when I’m off meds. Throw a bipolar episode on top of that, and I can barely function enough to get by. Fortunately, I’m pretty tenacious. Strategies I use to deal with ADD on a daily basis is the subject of another post, over on A Canvas of the Minds.
I can’t even imagine how difficult this has been for you. One of my cousin’s kids is highly suspected to have ADHD. My cousin found out recently, after she had to take him to the doctor for his disruptive behavior. He’s four-year-old. He still has to go through the proper tests and such that they do for it, but his behavior is highly indicative of ADHD his pediatrician says. My cousin, his mom, was diagnosed with ADHD when in college, so she wants to make sure he’s taken care of well before he gets any older. She struggled a lot growing up with it and doesn’t want him to go through the same things. I liked reading your post. It is informative and was nice to learn more about what my cousin and her son are – and will continue to be – dealing with.
I think your definition of being truly ADD/ADHD and not being one of those people who are part of the over-diagnosed group is perfect. It’s when it makes the ability to properly function as one should, almost or completely impossible. From what my cousin has told me about her struggles growing up, and how she almost didn’t make it through college due to it, sounds just like that. I am so glad that your medication has helped you so much. That is such a great thing to know that you have something that can help you.
Thank you for sharing this post. It’s definitely helpful for not just those who have it, but those of us who know someone who has it.
Amen! I had to leave my Ph.D. program because of ADD (which is thankfully now diagnosed). How long has the Adderall been working for you? I’m worried that it will peter out someday….I can’t function without it. I can’t brush my damn teeth without it!
Adderall has worked for me since day one on it, about three years at this point. I agree, it’s hard to function without it. I have a hard time driving because I get so distracted by billboards, etc. It’s incredibly frustrating!
Thanks for replying–I am glad Adderall is still working after three years…without it, I’m more productive when I am sleeping…
Thank you for posting this. I’ve often wondered if I have ADD as well as bipolar. My neurologist put me on Straterra once and it worked wonders, but I don’t recall my mood state at the time. I only had samples because the insurance company wouldn’t pay for it unless she stated I was ADD and she didn’t want to have that on my record. I am one of those people that is easily distracted by things until I am able to focus, then I become hyper-focused. If my concentration is broken for some reason, it takes a long time to focus again. As a child, I was always “daydreaming” – whether that’s a symptom or not, I don’t know.
Can you share some of your coping skills? Obviously the medication helps immensely, but I was hoping you could share some physical/mental suggestions as to how to deal with distractability.
Scratch that last paragraph, obviously I got distracted between reading the post and writing the reply.
Well, the few details you’ve mentioned above would be a pretty good indicator that ADD should be given serious consideration. The intermittent hyperfocus and inattentiveness is very typical. I love getting my hyperfocus on, but it only lasts so long. Daydreaming is considered pretty typical too, especially for girls.
I didn’t do well with Strattera and it’s beastly expensive unless you have insurance. Like the stimulants, it works on dopamine and norepinephrine, but more on the latter, while stimulants seem to work more on dopamine.
Wow – I can not imagine what it is like to go through life like that! I suffer from major bouts of inability to focus – but when I need to – I can rally. I couldn’t imagine not being able to drive due to distraction from billboards.
All the best to you. Thank you for shedding light on what life is like for you – leads to greater understanding.
Glad to provide some insight! I can usually drive just fine, but on a bad day I really have to work to keep my eyes on the road. It’s not the kind of problem you’d expect to encounter, but there it is.
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